Inside this special edition booklet, you will find lots of information about the people who will be representing their area in the 1st United Kingdom Disabled People’s Parliament. You will find their names and the region they represent and a little bit about themselves. All the information has been written by the Members of Parliament and The British Council of Disabled People has had no part in the text. Any further information from the Members of Parliament or The British Council of Disabled People will be put into accessible language and formats. We hope you find this information useful. Can we remind you that the 1st Parliament session will be held on 4th and 5th October 2003 at the Jury’s Inn, Broad Street, BIRMINGHAM. Our Annual General Meeting will also be held on 4th October 2003 at the same venue. We look forward to seeing you there!   !"#!$"%&& #'$'$() !#+" s !! v ldege  s $') know & &Actmens Head Office -Derby Director.......................................................... Andy Rickell PA to Director................................................. Doreen Briscoe-Thompson Development Officer — Organisational.......... Vicki Stowell Development Officer — Finance/Fundraising Bob Crane Administration Assistant................................. Kevin Towler Information Officer/Editor of Activate.............. Anastasia Kelly Research Officer............................................ Margaret Bordogna Crane Transcriptions Officer..................................... Jayne Foulds Campaigns Officer ......................................... Haresh Sood Address: BCODP, Litchurch Plaza, Litchurch Lane, Derby DE24 8AA Telephone: 01332 295551 Fax: 01332 295580 Minicom: 01332 295581 Email: Activate@bcodp.org.uk or general@bcodp.org.uk BCODP wish to acknowledge ‘CHANGE’ Picturebank and Access 2 by People First for the pictures used throughout Activate. Disclaimer: The material found within Activate is the opinion of the writer, and not necessarily the opinion of BCODP. Activate is available in other formats on request ‘Activate’ from BCODP   0  r    t   $   e w (. e ! s UK Disabled People’s Parliament Special..................................... 1 Contacts & Acknowledgements..................................................... 2 Member of Parliament Profiles...................................................... 4 Lobby of Parliament ....................................................................33 Advertisement — Brent Association of Disabled People............34 BCODP Campaign ......................................................................35 People First Campaign................................................................37 Royal National Theatre................................................................41 Advertisement—Choices and Rights DisabilityCoalition............42 Advertisement—Surrey Independent Living Council...................43 News from LCIL...........................................................................44 Rights Not Charity .......................................................................45 Letters ........................................................................................46 Press Release — Skill.................................................................52 TheAccessible PropertyRegister...............................................54 Want to Sponsor An Author? .......................................................55 ‘Activate’ from BCODP  b %' e  n ! a   s  %! o Name: Asmita Acharya Group: Brent Advocacy Concerns Region: London This is what Asmita wants to say about herself. I have a physical and a learning disability. I want to speak up for other disabled people so that other people can understand what we can do and so that we can get jobs. I am on the student council at the day centre I go to. Some people with learning disabilities sit on the Brent Learning Disabilities Partnership Board. I go to most of the meetings and some of the sub-groups. We talk about making day services better and how people can be helped to get jobs. Name: Bruce Birchall Group: Action on Disability Kensington and Chelsea Region: London This is what Bruce wants to say about himself. Articulate, creative, intelligent, Cambridge graduate, blunt, outspoken, Grandmaster in creative thinking. Worked as playwright, theatre director, journalist, editor, typesetter, chess coach and drama lecturer before becoming mobility impaired with the complications of diabetes in the feet. Active in 6 Trade Unions: Equity, Theatre Writers Union, Writers Guild, NATFHE, NUJ and NGA. Whoever heard of a Parliament elected in the summer school holidays, when people are away, that doesn’t announce its constituencies, its frequency of meetings or the duration of a Parliament? And expects most MP’s to pay their own way? This project is inadequately financed, poorly organised and has not been thought through properly. Set Bruce loose aboot the Hoose, to change all that! ‘Activate’ from BCODP Name: Penny Bould Group: Council of Disabled People Coventry and Warwickshire Region: West Midlands This is what Penny wants to say about herself. Ever get asked: “What’s wrong with you?” -I reply “Consider what’s right!” · A warm but determined, bold yet calm character and a good listener. Qualified counsellor, unafraid of politely asking tough questions. · An ex-BBC news reporter, presenter turned occasional “Breaking Barri- ers” European Union’s United Kingdom certificate aware winning dis- ability and mainstream arts performer as “Wild Woman On and Off Wheels!” · Experienced UK and Euro Disability and equality conference speaker and facilitator. · Formerly e.g.: Trades Union Congress tutor; national union equality official; public relations consultant entrepreneur; trainer; law court and national newspaper reporter; Editor and PRO national educational “disadvantage” advice centre. · Now 40 something low income electric wheelchair user living with se- vere M.E. · Written for British Council of Disabled People’s “Activate”, Disability Times and Disability Arts in London. Ex Campaign Chair Council of Disabled People Warwickshire and Coventry (31 paid staff) · Employing social model of disability campaigning, e.g. for:- · Rights to live plus unoppressive services for really I independent living · Biting anti-discrimination laws and pro-active government agencies · Stronger empowering democratic disabled people’s movement · Positive not “pathetic” images ‘Activate’ from BCODP Name: Joe Boyle Group: Greater London Action on Disability Region: London This what Joe wants to say about himself. I contracted polio at the age of 2.5 years old which has left me with dexterity and mobility problems. I also experience epilepsy as a juvenile which I no longer experience (thank god!). I am also carer of a family member with a chronic mental health problem. Name: Raymond John Broadhead Group; Coalition of Disabled People Birmingham Region: West Midlands I would like to help people by speaking out and give my support and speak on their behalf. Equal rights for disabled people and also make sure they are happy and getting the care help and support that they need. I would like to contact the European Convention on Human Rights and get better services for people like drop in centres and leisure centres. Name: Sheila Blair Group: Trade Union Disability Alliance and Greater Manchester Coalition of Disabled People Region: North West This is what Sheila wants to say about herself. I wish to become a member of the United Kingdom Disabled People’s Par- liament. I have been actively involved in The British Council of Disabled people as a member of National Council, then Vice-Chairperson, Chairperson and Treasurer. Name: Daniel Brown Group: Unison National Disabled Members Committee Region: Yorkshire and Humberside This is what Daniel wants to say about himself. I would like to nominate myself as a candidate for the United Kingdom Dis- abled People’s Parliament this year. I am a disabled person (physical dis- ability). I am married with two young adult children. I presently work in the volun- tary sector as a paid project co-ordinator in the field of preventative services for older people and people with disabilities. I am a committee member of Choices and Rights, which is a member group of The British Council of Dis- abled People. For a number of years I worked in the Adult Department of Social Services not I may add a department which at that time responded to the Social Model of Disability. I also served for a couple of years as a mem- ber of Unison's National Disabled Committee reporting back to the National Executive Committee on issues regarding disabled members. For the last fourteen years I have served as an elected member for the City Council of Kingston Upon Hull. I lost my seat in May 2001. and since 1997 held the cabinet portfolio for Health, Social Services and Social Inclusion. As a dis- abled person I am committed to the Social Model of Disability, also firmly believe that not only do disabled people require legislation in order to sup- port them in ensuring equality, they also require a voice Nationally that will not only be heard but by respected as well. In closing I would like to say that the proposal by BCODP in relation to setting up a United Kingdom Dis- abled People’s Parliament will go a long way in meeting the aspirations of people with a disability. Name: Peter Budgen Group: Disabled Persons Liaison Committee Region: South East This is what Peter wants to say about himself. I am 49, had polio when I was two and went through mainstream education. I worked for a software company and eventually set up my own software company employing 12 people. Following an accident I closed down my computer company and went from crutches to being in a wheelchair. I formed a company, Disability Audit Sevices Ltd, that carries out Access Audits and Awareness Training. I am a voluntary member for High Weald Housing Association and Maid- stone Housing Trust, which each have 6500 properties. I am Chairman of the Centre for Independent Living Kent and have been successful in gaining one of the grants under EYDP to run an advocacy project for dis- abled people in Kent. I am interested in the Disabled People’s Parliament because this can be a vehicle that can demonstrate the overall need for the Government to con- sider the needs of all people in its legislative process. Name: Susan Carson Group: Manchester Disabled People’s Access Group Region: North West This is what Susan wants to say about herself. Being disabled for four years has made me realise the need for representa- tion at national level. The need for inclusion in matters that affect our eve- ryday living and the need to empower people to manage their affairs. I strongly believe there is a national need to have a level playing field where everyone has equal access to help, services and information irrespective of the postcode. There is a need to codify and bring in new laws which will bring provision of appropriate ways to enhance the quality of life for everyone. In this year of the Disabled the time is right to organise for the future as, so often good in- tentions are soon forgotten. My contribution is actively promoting Access to Work and I am helping to organise a Jobs Forum in the Manchester Arndale Centre in September. Name: Julie Charles Group: Equalities Region: London This is what Julie wants to say about herself. I am a Black disabled woman and a well-known Rights Campaigner and also an activist for disabled people from Black and Minority Ethnic Commu- nities. I truly believe the time has come for a disabled peoples parliament, one which, when formed, will be the vehicle needed to strongly voice the views, concerns and rights of our community. As disabled people, we are very well aware of the discrimination which ex- ist, and the isolation by a society that excludes us. Equal rights in society which accepts all people—including disabled people, whatever our ethnicity or colour is a Human Rights, which should not be un- dermined. As a campaigner, activist, community leader and Government adviser for Black and Minority Ethnic Communities, I believe I have both the knowledge and skills required, particularly in Health and Social care, Hous- ing, Education and Employment to guide the Race and Disability Agenda and the drive to bring to the forefront recognition of the needs of disabled people from Black and Minority Ethnic Communities. Name: Mel Collins Group: National League of The Blind and Disabled Region: London This is what Mel wants to say about himself. I believe that with my knowledge and background that I have gained through being a Councillor, through my contact with various public bodies and the work I have done with the Community Health Council and the short time I spent on the primary care group would stand me in good stead to work diligently with my other colleagues on the parliament for a better life for disabled people. Name: Gareth Davis Group: National League of The Blind and Disabled Region: London This is what Gareth wants to say about himself. I am standing for the Disabled People’s Parliament for the obvious reason that I think I have something to contribute. I have decades of experience of the Trade Union movement and Labour Party in the wider field but am now the President of the NLBD, a member of the Executive Council of the ISTC, on the TUC Disability Committee and a trustee of several national charities. Current areas of expertise are: employment, civil rights, benefits, internationalism, etc. I played a fairly sig- nificant role in formulating Government policy on disability discrimination to the extent of moving the resolution at Labour Party Conference in 1997 that led to the Taskforce, the Commission and the SENDA. We still have plenty to do and I am hoping to play a role in this so I seek your support for my candidature. Name: Andrew Dick Group: Lothian Centre for Integrated Living Region: Scotland This is what Andrew wants to say about himself. I am a 55 year old wheelchair user. I have lived in my own home rented from the Thistle Foundation in Edinburgh for the past 19 years. Prior to moving to Edinburgh, I lived in Largs in Ayrshire where I worked in Shel- tered Employment for Haven Products Ltd as an assembly worker, assem- bling computer component parts. I have not been in full time employment since moving to Edinburgh, but am currently involved in voluntary work, with the Thistle Foundation’s Resource Centre. I am hopeful this will lead to part-time employment in the near future. I have been interested in politics for some years and stood as a candidate for Edinburgh’s Craigmillar Ward in the recent local Government elections. In addition to being a member of Lothian Centre for Integrated Living, I am also involved in a current cam- paign which aims to improve the provision of accessible public transport in the Lothians. Name: Daniel Docherty Group: Manchester People First Region: North West This is what Daniel wants to say about himself. I am a learning disabled gay man. For the past eleven years at Manchester People First some of my roles were Chair, Vice-Chair, Trainer, Partnership Board Member. I run a speak up group and am chair of the Northwest Peo- ple First, Chair of the good as you 2 group, this group is for gay, lesbian, and bisexual learning disabled adults. I am on the regional task force, I have been asked too join the National Disability Forum but I am not on it yet. I have experience of working with groups as listed above and I will feed back into all of these groups and the parliament. I am heavily involved in the disability movement. I strongly campaign for equal rights and independ- ent living and making the White Paper work to its full potential. Name: James Elder-Woodward Group: Inclusion Scotland Region: Scotland This is what Jim wants to say about himself. I wish to represent Scotland as a member of the United Kingdom Disabled People’s Parliament because I am: · Dedicated to promoting the principles and outcomes of the social model of disability, independent living and social inclusion · Part of and accountable to a Scotland-wide network of disabled peo- ple’s organisations with personal contacts with individuals from all over the country; and I wish to promote the thoughts and desires of those Scottish people. · Knowledgeable about social policy and the movement in Europe, not only having studied them in Scotland, but in Albania, Israel, Sweden and Germany, as well as at the ILO in Geneva. · Able and skilled to influence policy development profoundly, due to my wide and deep understanding of what is possible and what is right. Name: Daniel Gallimore Group: West of England Coalition of Disabled People Region: South West This is what Daniel wants to say about himself. I believe I qualify to sit on the Disabled Parliament for a number of rea- sons. I have experienced a wide spectrum of disability myself so feel able to relate to the many challenges faced. I’ve suffered from Behcets Disease since the age of 8, spending chunks of my formative years in hospital. I was a qualified computer maintenance and servicing engineer when in May 1996 my life changed completely. I went to the aid of a young man be- ing assaulted in Bristol and as a result of head injuries received, lost my sight. Coming out of hospital blind and in a wheelchair, it took me months to get mobile again due to the couple of strokes I had suffered. I now run a Blind Awareness website that offers training to firms, school and businesses. Name: Kevin Fleisch Group: The Greater London Action on Disability Region: London This is what Kevin wants to say about himself. · I am a member of The Greater London Action on Disability, Scope, Arthritis Care, Backcare, RSIA and co-chair the Central London RSI Support Group. I review publications for Cancer BACUP. · The RSI (10 years: I use a PA for 20 hours a week at work through the Access to Work scheme) and back problems (17 operations) have been my major disabilities. · I have worked as an advocate for two disability organisations, but have spent over a dozen years as a trainer—from setting up and operating a toddler group to postgraduate students, wit most forms of education in-between. · I have 3 children, five grandchildren (5-17), two cats and like listening to jazz, watching wrestling (my youngest son’s profession), and read- ing. · Apart from the obvious interest/concerns, I’m especially interested in transport {costs (e.g. bus vs taxi).} affordable aids (e.g. thick rubber grip forks) and family life. Name: Rowland Urey Group: Oldham Open User Forum (Mental Health) Region: North West This is what Rowland wants to say about himself. I am 56 years old and have travelled all over the country helping to repre- sent those people who use Oldham’s mental health services. I am chair- man of the Oldham Open User Forum. I make my voice heard nationally to fight for the advancement and campaign for a quality of life for people in mental distress. I would consider it a privilege to be a United Kingdom Disabled People’s Parliament Member. Name: Barbara Flemming Group: The Omnibus Partnership Region: Northern Ireland This is what Barbara wants to say about herself. I am a mother with severe physical impairments such as upper and lower body muscle atrophy. Therefore, I use a wheelchair. Due to brain malfunc- tion I have to drink Potassium Chloride constantly through the day to main- tain function of all muscles. I also suffer from chronic Fibromyalgia and all symptoms such an illness entails. Although from a nursing background, I have always been a supporter of the Social Model of Disability. In recent years as a disabled person myself I try to re-educate and change society by adding my support to several organi- sations. I am aware that the measure of independence I have now is due to disabled people in the past challenging the status quo attitude of society toward disability. My aim is to, in some way, do the same for the next gen- eration. All About Fibroids Health Information Workshop for Disabled women Tuesday 21 October 2003 Topics to be covered include: Signs and symptoms Types of fibroids Test and diagnosis Prevention and Self Help Self Advocacy Communicating with health and medical professionals Workshop for Disabled Women Thursday 25 September 2003- 08-29 Topics to be covered include: Getting the information we need Speaking up and asking questions Consent issues – saying no *$ # !('&- Name: Roy Hancock Group: Trade Union Disability Alliance Region: North West This is what Roy wants to say about himself. I passionately believe that statutory provision in the UK relating to equality for disabled people needs to be radically strengthened to respond to the civil rights needs and demands of disabled people in em- ployment and all other walks of life. As a parliamentarian, I would expect to engage in relationship with govern- ment that promotes, progresses action, and seeks accountability on, legis- lative and policy developments relating to civil rights for disabled people. In the short term, I would seek to campaign for a civil rights based Disability Bill. In the long term I would seek to use my position to press for a govern- ment support for a European Union Disability Directive, currently in draft, which if adopted would provide for full civil rights within a pan-European so- cial model of disability. Name: David Hart Group: The Greater London Action on Disability Region: London This is what David wants to say about himself. I am physically and sensory disabled. I chair a users group in Lambeth call the Lambeth Community Initiative which is only disabled peo- ple of all groups and ages and BME inclusive. I am 63 years of age and work now only part-time as a freelance journalist though was a full time journalist for a national paper covering social and political affairs. I am cur- rently Co-Chair of Lambeth Local Strategic Partnership and of the 88 NRF funded areas am the only one from the voluntary and community sector. I am from a minority ethnic community and have done and been involved in much campaigning. I currently live alone in sheltered housing in London. I have not been involved in nationally previously through have lived in Lon- don, Leeds, Hull and Manchester so have some experience and would now like to contribute. Name: Patrick Horan Group: Southwark Disability Association Region: London This is what Patrick wants to say about himself 53 years of age, I fully be- lieve in the Social Model of Disability and that disabled people do not have a collective voice. Fed up with the big disabled companies being run by non-disabled people who have no idea at all, what disabled people want. As a Member of Parliament I will make sure that any issues disabled people have are heard at the highest level. I fully believe that a UK disabled peo- ples parliament representing disabled people will have a strong voice and can be an effective lobbying tool. I have lots of disability experience: · Former Chair of Southward Taxicard (resigned after 2 years) · Chair CPG Peckham Pulse · Advisory board member Peckham Pulse · Board Member of DaRT · Member of UK National Register of Access Consultants (NRAC) · Have taken lots of disability courses and have the certificates real, tan- gible and beneficial effect on the lives of individual disabled people. Name: Polly Smith Group: Trade Union Disability Alliance Region: East of England This is what Polly wants to say about herself. I work in the community, supporting elderly people who want to remain independent in their own homes rather than having to move to a residential home. I believe it is a Human Right for all people to choose where they want to live and who can support them. Also I believe that dis- abled people should play an active role in society and not to be discrimi- nated against by the erection of barriers. Disabled People need organisa- tions/meetings—controlled by disabled people where their views can be de- bated/progressed. Name: Edward Hemmings Group: Disability Action Cheltenham Region: South West This is what Edward would like to say about himself. I worked for 25 years at a Government Department where I was staff repre- sentative in the appropriate union and Chairman of its Area Committee. I have had many years experience in working for disabled people, specifi- cally:- Vice-Chair Older Persons Assembly County committee of Age Concern Chair/Director Disability Action Cheltenham Chair/Director Disability Action Gloucestershire Trustee Council for Voluntary Services Cheltenham Treasurer Cheltenham Voluntary Forum Representative Cheltenham: A Learning Town (forum) Committee Whaddon, Lynworth & Priors Member Neighbourhood Project Trustee: Parklands Community Centre Also a representational role with Cheltenham Borough Council and Gloucestershire County Council Name: Gordon Hill Group: Lothian Centre for Integrated Living Region: Scotland This is what Gordon wants to say about himself. Brought up in Aberdeen in the early 1940’s, I retired as a Research Engi- neer in 1992. I am married and have 3 children and 4 grandchildren. I have represented Kincardine and Deeside Disability Action Group since its inaugural meeting in 1988. Consequently, I have appeared in the local and national press and most recently appeared on ITV network news as part of the orange pound campaign to improve access to all facilities in the local community. At present I am Chairman of the group. The key issues of people with disabilities in Britain today are: Access The need for easy access for wheelchairs in all communities and housing develop- ment People’s Rights People with disabilities without exception are often forgotten particularly if they are wheelchair users and are talked down to Financial Help Government could do more to help peo- ple with disabilities and travel October 2003 The Disability Discrimination Act must be taken seriously Name: Peter Ingram-Monk Group: Dumfries and Galloway Centre for Independent Living Region: Scotland This is what Peter wants to say about himself. The United Kingdom Disabled People’s Parliament is probably the most important development for disabled people since the introduction of the DDA. Whilst the DDA is not all that we as disabled people would wish, I am confident that the Parliament will supply the strong voice that we require. I have spent over 50 years in the commercial sector running my own companies. I am also a senior office-bearer in several user-controlled local and national disability organisations and I feel that my experience in both the commercial and voluntary sectors will enhance the work of the Parliament. Having contracted Polio at an early stage, I am fully aware of the barriers which stop disabled people’s full participation in society. My objective in seeking to represent disabled people in this parliament is to ensure that it has a real, tangible and beneficial effect on the lives of individual disabled people. Name: Dawn Lorraine Francess Yerley McGhie Group: Coalition of Disabled People Birmingham Region: West Midlands This is what Dawn wants to say about herself. I am in a wheelchair and have various ailments such as epilepsy, spastic paralysis, spinal defects, asthma, diabetes, and vasculitus. I am an advocate at my centre. I am not the sort of person who if told you cannot come, or, do that because I am in a wheelchair or my other ailments. Many years ago I used to be in a group called DAN. I did a protest at New Street Train Station. At present I have an appeal against the way disabled persons are treated on the trains. Name: Robert John Jamieson Group: Essex Coalition of Disabled People Region: East of England This is what Robert wants to say about himself. I always believed in Disability Rights in my life. In 1965 I started my own youth club for disabled people in Dagenham. My aims to give a chance to disabled youngsters to meet up together without old people telling us what to do in day centres etc. 1970’s I started another club where I worked in Scope’s Works centre Chingford, this club moved into your centre and we changed into PHAB Club and the council paid me to run this club. Meanwhile I joined Waltham Forest Association for People with Disabilities. This association taught me a lot as we started a disabled sports club, DIAL, Dial A Ride and Disability Resource Centre up in the borough. 1980’s I was involved following associations with work and voluntary work. I was Field Officer and Consultant for London Union of Youth Clubs, I was on executive board of GLAD and work for Islington Disablement Associa- tion. In 1988 to 1992 I was leisure Officer and Tutor in Halliwich Residential FE College, Enfield. I really enjoyed this work and getting my Cert’ED. It was great to see my students going to sailing, riding, running, pop concerts and learning about disability rights. In 2000’s I am still very involved with following disability associations. For me the Social Model of Disability should be in the society. Name: James McIntosh Group: Lothan Council for Independent Living Region: Scotland This is what James would like to say about himself. Severely disabled by cerebral palsy, for almost 40 years I have lived in insti- tutions. It was a terrible experience, but I never lost hope, nor my fighting spirit. In the 1970’s 3 of us went to court in Edinburgh to establish our right to vote. Since then, I have devoted all my time to fighting for the rights of disabled people. I am on the Board or Management committees of Edinburgh Development Group; sticking up for your rights group: Partners in advocacy; SPAEN. I am also a member of the strategic development (Learning Disability) and Partners in policymaking groups of Edinburgh Council and the steering group of Edinburgh Advocating Together. These all feed directly into the policy and service development of Edinburgh City Council. Two years ago I was appointed to the Scottish Social Services Council, which sets standards for training, practice and employment in social care in Scotland. Name: Dino Powell Group: Greenwich Association of Disabled People Region: London This is what Dino wants to say about himself. I am your campaigner for Disabled parents. Disabled parents should have a family life but that’s not the case. Me and my wife are disabled parents, we’ve been through a dramatic time, our son was put up for an adoption be- cause we didn’t get the right support or the services we want. I reckon that assessment should be done at home environment, not at FRS. I reckon during the pre-birth conference everything should be in place then you would not have the child taken away. Name: Michael Nash Group: Disability Action in the Borough of Barnet Region: London This is what Michael wants to say about himself. Before my impairments caused me to retire from work I was a Chief Execu- tive Officer of a group of companies. I am used to negotiating at a senior level with people from all walks of life. I represent all disabled people in Barnet where I am the Executive Chair- man of Disability Action in the borough of Barnet. (DabB). I am also a co- opted member of the National Association of Wheelchair User Groups and am a member of the NHS Wheelchair Forum (representing users). I net- work with many other organisations of disabled people across the country, and take every opportunity to ensure the Social Model of Disability in en- forced. I am non political and am not intimidated by authority or position. I feel that I have the commitment, experience and ability to be a good member of the United Kingdom Disabled People’s Parliament. Name: Ralph Perkins Group: Unison Northwest Region Region: North West This is what Ralph wants to say about himself. I passionately believe that statutory provision in the United Kingdom relating to equality for disabled people needs to be radically strengthened to re- spond to the civil rights needs and demands of disabled people in employ- ment and all other walks of life. As a parliamentarian, I would expect to engage in a relationship with gov- ernment that promotes, progresses action and seeks accountability on leg- islative and policy developments relating to civil rights for disabled people. In the short term, I would seek to campaign for a civil rights-based Disability Bill. In the long term I would seek to use my position to press for govern- ment support for a European Union Disability Directive, currently in draft, which if adopted would provide for full civil rights within a pan-European so- cial model of disability. Name: Steve Paget MBE Group: Full Membership Application Pending Region: South West This is what Steve wants to say about himself. I am 39 years old and reside in Cornwall. Having sustained an injury whilst serving in the Royal Navy, I have lived with disability for the past eighteen years. A founder member and Chair of the Cornwall Disability Forum and presently a trustee of the Cornwall Mobility Trust. I also served 5 years with the Com- munity Fund as a Regional Awards Committee member and am presently on the Board of the South West Foundation. Living with disability can be difficult at times, but for those who reside in ‘far flung’ or rural areas, it can be particularly challenging. I am keen to see greater empowerment of disabled people, but acknowledge that to see this become a reality a number of issues need to be addressed. If elected, with your support I would aim to try and make a difference that will enhance the quality of life for people who like myself live in rural areas. Name: Dave Podd Group: Norfolk Coalition of Disabled People Region: East of England This is what Dave wants to say about himself. I have been disabled since 1970 having suffered a spinal injury at work that has left me a wheelchair user. I have fought the rights of disabled people since 1975 in different parts of the country but have been more involved since I became Chairman of the Great Yarmouth Access Group for the last 12 years and the Norfolk Coalition since it first started. I am now a Director of the Coalition and also on the management committee in the last twelve years. I would like to think I have had something to do with the changes in the Yarmouth area. I was once told I was like a dog with a bone—once I get my teeth into something that I think is our right, but can’t have because we are disabled and will cost a bit more. Name: Andy Rickell Group: Disability Action Cheltenham Region: South West This is what Andy wants to say about himself. I am 40 and have been impaired since birth. Eight years ago I got involved with the National Network of Disabled Youth and Community De- velopment Workers and was their last Treasurer. Six years ago I helped set up Disability Action Cheltenham, which is 100% run and controlled by dis- abled people, and which ran the largest internet café in Cheltenham. I also helped set up Disability Action Gloucestershire. I am now the Director of BCODP. I am used to speaking out about what I believe in. I am a borough and county councillor in Cheltenham, and a local preacher for the Methodist Church. I believe that the best way to get people in power to listen to dis- abled people is for as many disabled people as possible to work together to change society so that we have the same human and civil rights as every- one else. I think it is really important that all disabled people can be in- cluded when we work with one another. If elected I look forward to working with other disabled people to get our views across. Name: Richard Rieser Group: Disability Equality in Education Region: London This is what Richard wants to say about himself. I wish to be a member of the Disabled People’s Parliament. I am a disabled wheelchair user and am very interested in developing a representative voice for disabled people in the United Kingdom. Though much has been achieved by disabled people struggling for full and enforceable civil rights with the Disability Discrimination Act and its extension to education and the setting up of the Disability Rights Commission, much remains to be achieved. Not least building a mass based movement of disabled people who support self advocacy and the social model. I am currently on the TUC Disability Committee nominated from the TUC and Vice Chair of the Council for Disabled Children. My particular interest is in inclusive education and disability equality training. As Director of DEE, I help organise training across the education system. I also have an interest in the media and rep- resentation of disabled people having founded the 1 in 8 Groups and the Raspberry Ripple Awards. I am a member of The Greater London Action on Disability and the Greater Manchester Coalition of Disabled People. Name: Raymund Sass MBA Group: REGARD Region; London This is what Raymund wants to say about himself. I am 43 years of age, multilingual, physically disabled (left arm paralyzed), and I am working self employed in the property business. I am an Executive Director and Trustee of REGARD. I lived, studied (Business & European Languages) and worked in five different European countries and have been living in London now for the past 4 years. I’m interested in botany, permaculture and an extrovert, usually friendly and open minded guy. Name: Janet Seymour Kirk Group: National League of the Blind and Disabled Region: Yorkshire and Humberside This is what Janet would like to say about herself. I passionately believe that statutory provision in the United Kingdom relating to equality for disabled people needs to be radically strengthened to re- spond to the civil rights needs and demands of disabled people in employ- ment and all other walks of life. As a parliamentarian, I would expect to engage in a relationship with gov- ernment that promotes, progresses action and seeks accountability on leg- islative and policy developments relating to civil rights for disabled people. In the short term, I would seek to campaign for a civil rights-based Disability Bill. In the long term I would seek to use my position to press for govern- ment support for a European Union Disability Directive, currently in draft, which if adopted would provide for full civil rights within a pan-European so- cial model of disability. Name: Denis Robert Shovlin Group: Inclusion Scotland Region: Scotland This is what Denis wants to say about himself. I am an experienced community councillor, researcher and campaigner who is keen to build bridges and to make positive connections and advance- ments for disabled people. It would be an honour if elected as a member of the Disabled Parliament in the UK, and willing to co-operate in a positive partnership with the legislative authorities and the broader disability move- ment. I have extensive experience, in a voluntary capacity working for the community and disability concerns. I am 50 years of age and a university graduate; I am an active member of Inclusion Scotland. I am of the opinion that I can effectively use my extensive experience for the benefit of the wider UK disability movement. If elected as a member of parliament I would be keen to help facilitate a lobbying group within our own Scottish parliament. Name: Paul Southwood Group: Trade Union Disability Alliance Region: East Midlands This is what Paul wants to say about himself. I seek to improve the quality of life for disabled people. For them to be treated as equals. For disabled people to be able to be more independent by the use of better technology and adopting of building/modes of transport for their use and giving them a means of more independence. Also to highlight the different groups and organisations, to encourage more disabled people to have a say in their lives. To use the media to give recognition to the parliament. To make the parlia- ment’s voice heard both at national and European level. Name: Roy Webb Group: Southwark Disablement Association Region: London This is what Roy wants to say about himself. I have been active in the disabled peoples movement for many years and want to stand as a candidate for the Parliament because | would like to see the disabled peoples movement grow at a grassroots level, with more dis- abled people from the wide range of our community getting involved in their local BCODP member organisation, to strengthen and make more inclusive our local groups, which must be the basis of building our movement. At a national level I would like to see more co-ordination between the work on a new disability bill, the new European directive and the campaign about a single equalities commission. I will also like to see a national campaign about community care charging and about giving proper funding to community care and direct payments. Name: Jonathon Toye Group: Norfolk Coalition of Disabled People Region: East of England This is what Jonathon wants to say about himself. have lived in Norfolk all my life. I read French and Italian at Salford -because it's the closest to Old Trafford. It was quite something watching Best, Law, Kidd and Charlton every other week. At least you could get in then. Published a collection of poems (Ribbons, 1978) and have written various plays and books of children's stories. I ran a theatre company called the eastern inquisition* for several years in the 80s. Toured festivals. Profit- shared at the Edinburgh Fringe. [*because nobody expects the...] I taught for several years and took up my present post at West Norfolk Disability Information Service in 1999 and enjoy the job immensely. Tilting at discrimination and having arguments with authority -and getting paid for it...wonderful! I feel passionately about inclusion and demolishing all the barriers. Being elected Chair of the Norfolk Coalition of Disabled People last year was quite something. Not quite sure which way to go at first. I'm gradually finding my way. Name: John Ohayon Group: The Omnibus Partnership Region; Northern Ireland This is what John wants to say about himself I have been visually impaired since birth. As I am originally from France I speak French fluently. have a Masters Degree in Music, also a Degree in Entertainment with the option of Science of Education and a Degree in Drama. In 1999 and 2000 I studied Media at Mediable Productions, Belfast. Whilst there I was confronted with presenting a radio package regarding bullying at school, work or family. I have also done a package about stress. Again, stress could involve the home, at work or in the family. I am also a member of The Omnibus Partnership’s Management Committee and a member of Northern Ireland Association of Mental Health (Beacon Centres). Last year I attended BCODP’s conference and thoroughly enjoyed my day in Birmingham. Therefore, I would like to join and be part of the UKDPP be- cause I am interested in what is happening with and anything regarding dis- ability. I know that disabled people are discriminated against, not only in the U.K., but in many European countries. Name: Heather Matthews Group: The Omnibus Partnership Region; Northern Ireland This is what Heather wants to say about herself. Until 1996 I was employed as a civil servant working in the Social Security Agency (Benefits Agency) so I have a good grounding in benefits. Following an accident that left me paralysed I took a career break. I spent some time volunteering in my local Citizen’s Advice Bureau before going to university to study Social Policy. Last year I qualified with a BSc (Hons) in Social Policy. At present I volunteer as a secretary for a local group which campaigns for accessible, integrated public transport for disabled people. We also monitor and respond to government proposals and plans regarding transport and related issues. I also am a representative on the Develop- ment Committee for the UKDPP. Although we now have regional legislative bodies I believe a united parlia- ment is still necessary as many procedures laid down by the UK Parliamen- tary body are mirrored by the regional bodies. The UKDPP will give us an arena to share and discuss regional differences. Name: Robert Matthews Group: The Omnibus Partnership Region: Northern Ireland This is what Robert wants to say about himself. Although I am now retired I spent most of my working life as a self-employed businessman. I was also responsible for employing many people over the years. Although I am physically impaired due to angina, severe arthritis and fibromyalgia, I also care for my wife. My circumstances let me see the effects of policies from two angles. I think the UKDPP will meet the need for a forum to highlight the ongoing need for change in public perception and attitude towards disabled people. Disabled people must unite in order to campaign for real change in Government policy. It will also let us share and compare regional differ- ences so that we can argue for change on an equity agenda. We will also lobby our MPs with a united front and make a greater impact. Name: Lucy Jaques Group: Surrey Independent Living Council Region: South East of England This is what Lucy wants to say about herself. My name is Lucy Jaques, I am in my 20’s and I live in Surrey. I am currently a student studying health and social care, and sociology. I was born with a very rare genetic disorder, which means that I am blind, hearing impaired and have limited movement down my left-hand-side. I am interested in standing for election as I believe that I could provide some valuable input as a result of my own personal experiences. I am a full-member of Surrey Independent Living Counsel, who are full- members of NCIL and BCODP as they are run by 75% disabled people. They provide a wide range of support to disabled people who are interested in running a Direct Payment Package. I am also hoping to be co-opted on to their committee later this year as I have experience of running a Direct Payment Package. I employ my own Personal Assistant’s which has given me more control, flexibility and independence over my life. I truly believe that Independent Living is an important choice that should be offered to all disabled people who are considered willing and able to run such a scheme. I have experience of working as vice chair on a young people’s forum. I have also interviewed on a young persons panel for jobs within Surrey So- cial Services. I am also a committee member of LMBBS (my condition), where I have represented the views of people with the condition. I would love to be involved in this exciting parliament and hope that I have got something to offer. Name: Richard Cook Group: Trade Union Disability Alliance Region: South East This is what Richard wants to say about himself. I have a passion for being involved in the disability movement. You only win an argument with better reasoning. Not sympathy. I was trade union con- vener looking after 200 people. Speech affected by Multiple Sclerosis. I hope its true I notice more than other people that I can do/manage. By speaking to up to 800 people at conference with the aid of a poem, which helps me. Name: David Leeks Group: Southampton Centre for Independent Living Ltd Region: South East The reason I would like to become a member of the UKDPP is that I can of- fer many years of experience in the disability field—it is a field in which I work part time in, and as an Independent Borough Councillor it has given me the ability to communicate and to listen all levels and at the same time put the point over. I was until 4 years ago a volunteer with the Samaritans giving 21 years of service. Until last year when I stepped down I held the post of national chairman of the British Polio Fellowship—8000 membership and this position I held for 4 years before that I was vice chairman for a number of years. I am still on their local executive committee for the Fellowship. I am vice chairman and trustee of our local Shopmobility and have been involved since its concep- tion.  o ' ! a  r % o  y b l i B  e ( o  . $ r 0&   3 '  0 $ (!( #"'$ 2!3' l 4 2 ! #) #& & r  1 t 2 0 6 . 0 There is to be a lobby of Parliament on Wednesday October 29th 2003 from 2.00 -4.00 in Westminster Hall The purpose of the lobby is to: • Promote our Rights and Freedoms Bill • Promote our rights through the Human Rights Act • Restore disabled people's dignity and humanity that despite all government promises are daily denied • The lobby is organised by Our Rights Now (ORN) and sponsored by Roger Barry MP. (Please note that the doors do not open till 2.00 so please do not arrange for people to arrive earlier.) RIGHTS are an issue for everybody! !*' e n !* s  d ! c Advertise your job vacancy, event or report in Activate to over 124 Full member organisations and 800 individuals for as little as £200. For more information contact Anastasia Kelly on 01332 295551, fax 01332 295580, Minicom 01332 295581 or email activate@bcodp.org.uk ‘Activate’ from BCODP (  n !* e Brent Association of Disabled People Providing Services to disabled people in Brent since 1970 Independent Living Project Co-ordinator 6 month contract for a 35 hrs per week Total Salary for Period £18,000 The person appointed will Recognise that Independent Living/Direct Payments is an empowering option for disabled people Two years experience in a similar job or consultancy Ability to work over a short period and produce results BADP supports the Social Model of Disability Closing Date for receipt of Applications 19th September 2003 5.00pm Friday Further Information & an Application Pack available from: The Administrator Brent Association of Disabled People 154 Harlesden Road London NW10 3RX Tel: 020-8451-3822 ext. 224 Text: 020-8451-3822 ext. 223 Fax: 020-8451-7803 e-mail: admin@badp.org Please state format required e.g. Large Print, Braille or disk. ‘Activate’ from BCODP  ' $/!!  !'"$ )&7 - l )7 ( CAMPAIGNING BRIEFING EU DISABILITY DIRECTIVE – HOW YOU CAN HELP TO GET BETTER CIVIL RIGHTS LAWS IN THE UK We want comprehensive civil rights laws for disabled people in the UK. One way to do that is to get new laws through the UK Parliament in Westminster, and we are working on that through the Disabled People’s Rights and Freedoms Bill. Another approach to get better civil rights laws for disabled people in the UK is to get the European Union to pass new laws on disability rights. This is because EU laws must now apply to the UK, and so the UK Parliament must turn any new EU law into a new UK law. Work at EU level has resulted in a proposed EU disability rights directive (EU laws are called directives) which would improve our current UK civil rights laws. There are efforts to push the EU to agree to this law, by encouraging them to agree to it during 2003 as a positive result of the European Year of Disabled People. The EU Parliament will probably support such a law, but there are sticking points elsewhere in the EU decision-making process, and these need to be dealt with. We know that Richard Howitt MEP is helping to push for this directive, but our colleagues and allies at EU level need our support to get this directive agreed to while the European Year gives us the best opportunity to do so. We have learnt from a very knowledgeable source that both the Minister for Disabled People and the Prime Minister himself are sympathetic to this cause. We would encourage you to write to both of them in support of the EU Disability Directive, as this will give them support when dealing with those people involved in government (who we know about) who are not enthusiastic about better civil rights laws. For more information about this EU Disability Directive, the text of it can be found on the following website : ‘Activate’ from BCODP We attach a letter which you could just sign and send off, though it is much more effective if you write a letter in your own words. Andy Rickell Director BCODP Maria Eagle MP Minister for Disabled People Department for Work and Pensions Richmond House 78 Whitehall LONDON June 2003 Dear Maria EU DISABILITY DIRECTIVE As a disabled person, I support the British Council of Disabled People’s campaign for better civil rights laws for disabled people in the UK. I understand that there is a proposed EU Disability Directive. I believe such a law would go some way to improving disabled people’s rights. I would therefore encourage you to use all your influence to ensure UK support for this directive. Such support would be an appropriate outcome at EU level in the European Year of Disabled People. I believe you will be sympathetic to my views, and I would encourage you to communicate my views to your colleague, the Prime Minister, who I also hope will give this his full support. Yours sincerely Cc Tony Blair, Prime Minister, 10 Downing Street, LONDON ‘Activate’ from BCODP !&'9!$ '$ f ' ! !'"$ & -8& !&$' ! #" !)7 !'" * & )  ' !!&'$ #&) ) The government is trying to make a new law which will mean that people without learning difficulties will be able to make choices for people with learning difficulties. The government’s ideas are in the draft Mental Incapacity bill which has been written by the Department for Constitutional Affairs. The draft bill can be seen at www.lcd.gov.uk/family/mi/ The government is hoping that the new law will mean that people will be supported to make choices for themselves. The draft bill says that people with learning difficulties should be supported to make our own choices by giving us easy to understand information about our choices and enough time to make up our minds for ourselves. The draft bill also says that some people cannot make some choices for themselves. The draft bill says that if someone thinks a person cannot make a choice for themselves then they can make a choice on behalf of that person. Carol Lee, People First campaign volunteer said “People without Learning Difficulties often only think about what we can’t do, rather than what we can do, or could learn to do. They often want to protect us and are not willing to let us learn to do things for ourselves.” The law makes it easy for people without learning difficulties to make decisions on behalf of us. The draft mental incapacity bill says that anyone can make a decision for another if there is a “reasonable belief” that she or he lacks capacity. The sorts of choices that might be made on behalf of a person with learning difficulties are things like whether to go to the day centre, what to eat, what to wear and who to go out with. ‘Activate’ from BCODP For big decisions the draft bill says that the Court of Protection should make the decision or appoint a person to make the decision on behalf of the person with learning difficulties. The person who the court says can make decisions for someone else will be called a court appointed deputy. However the draft bill is not clear about which decisions can be made without going to the court of protection and which decisions will need to be made by the court of protection or by a court appointed deputy. Although the government says that it wants a new mental incapacity law to make sure people are allowed to make their own choices, People First Campaigns Officer, Nico Mac Given, thinks the main reason for bringing out the new law is so that carers and staff in services for people with learning difficulties will be legally covered if they make choices for someone. Organisations like Mencap have been lobbying the government for years because they were worried that staff in their services were not legally allowed to make choices for people they were supporting. People First members have been telling the government that we think the ideas in the mental incapacity bill will mean that we are even more bossed about and controlled than we are already. People First members have told the government about many examples of carers and paid staff bossing them about. Some examples given to the government by People First members include. “I am stopped from going out by my mum, I would like a place of my own, because I am treated like a child”. “I couldn’t do what I wanted to do when I lived at home. I had to be in bed by 10 o’clock and up by 6 o’clock to go to the day centre”. “I didn’t have control of my money at all. When I asked for money I only got £5, if I spent it she got mad”. “We have no access to our money, we are treated like children and patronized by staff” ‘Activate’ from BCODP “My mum said I can’t have a boyfriend”. “My fiance and I planned to get married, the staff at her group home stopped us from seeing each other and have sent her engagement ring back to me”. “Staff at the adult training centre treated us like children; they tried to stop me and my girlfriend seeing each other before she became my wife, we are married now”. “I was told for years by my residential home staff that I was being stupid to think I could live more independently. Now I live in my own flat and have got married.” People First members have told the government that giving a right to carers and paid staff to make choices for people with learning is very dangerous and goes against our human rights. Although the draft bill says lots of good things about how people should be supported to make their own decisions, it says nothing about how the government will make sure that these good things really happen. People First director, Andrew Lee asked Rosie Winterton MP, (who was the Minister responsible for the Mental incapacity Bill before Lord Filkin), how somebody will be able to complain if they are being stopped from making choices which they think they should be allowed to make. The ministers answer was, ‘we just don’t know’. People First thinks that it is really bad to give a right to people without learning difficulties to make choices for us without giving us a way to complain if we disagree with choices being made for us. People First thinks that the Government is putting too much faith in people without learning difficulties to make choices for us. People without learning difficulties often make choices for us that suit them, rather than what would be best for us. The draft bill says nothing about how the government will make sure that choices are being made for us that are best for us rather than best for our relatives or carers. ‘Activate’ from BCODP The draft bill says nothing about how the government will make sure that people with learning difficulties are really supported to make choices for ourselves. If the government were really serious about making sure people who find it hard to make choices were in control of their lives they would be making a law giving us a right to independent advocacy. Nico Mac Given, People First campaign’s officer says “If the Mental Incapacity Bill becomes a new law it will be a very big step backwards for people with learning difficulties rights. It is very important that as many people as possible get involved with this campaign. “People First campaign volunteer, Simone Aspis says, “We are calling upon everyone to help us at People 1st to make this a really good campaign and stop the Government making the Mental Incapacity Bill into a law. We need you to help us have a really big petition and to tell everyone we do not want this law People First has made a campaign pack which includes postcards and a draft letter to send to MP’s and a petition. Contact People First for a campaign pack and to offer any help you can give us. Write to: Campaigns, People First, 299 Kentish Town Road, London, NW5 2TJ, or phone: 0207 485 6660, or email, campaigning@peoplefirstltd.com The government has set up a scrutiny committee of MP’s and peers to look at the draft bill, People First needs supporters of the campaign against the mental incapacity bill to write or send a tape to the committee by the 1st of September to point out how dangerous the ideas in the draft bill are. Send your letters or tapes to: Scrutiny Unit, Committee Office, House of Commons, London, SW1A 0AA. Please send a copy of your letter to People First as well. ‘Activate’ from BCODP &' # ' e !&$ a / a AUDIO-DESCRIBED PERFORMANCES Jumpers 10 October at 7.45pm and 11 October at 2.30pm His Girl Friday 17 October at 7.30pm, 18 October at 2.00pm Power 25 October at 2.30pm, 27 October at 7.30pm Democracy 12 December at 7.30pm, 13 December at 2.30pm His Dark Materials Part I 3 February at 7.30pm, 28 February at 2.00pm His Dark Materials Part II 11 February at 7.30pm, 28 February at 7.00pm SIGN LANGUAGE INTERPRETED PERFORMANCES Edmond 1 October at 8.00pm Power 16 October at 7.30pm Jumpers 23 October at 7.45pm Tales from the Vienna Woods 4 November at 7.30pm Democracy 19 November at 7.30pm Mourning Becomes Electra 16 January at 6.15pm His Dark Materials Part I 10 February at 7.30pm His Dark Materials Part II 17 February at 7.00pm CAPTIONED PERFORMANCE Presented in collaboration with STAGETEXT Jumpers 1 November 2.30 pm Gemma Gibb, Press Office Royal National Theatre, South Bank London SE1 9PX Telephone: 020 7452 3233 Fax: 020 7452 3230 Email: ggibb@nationaltheatre.org.uk www.nationaltheatre.org.uk ‘Activate’ from BCODP (  n !* e Direct Payments Directory Co-ordinator Choices and Rights Disability Coalition, in partnership with Kingston upon Hull Social Services have successfully obtained a grant from the Department of Health Direct Payment Development Fund. A personal assistant directory will be created with up to 200 assistants in year 1 following establishment of the directory and 500 by year 3. The directory will be online allowing ‘purchasers’ to see the people available and the skills, qualifications and experience they have. Assistants can ‘sell’ as many hours they have available from as little as 2 hours per month. We are now looking to appoint a full time directory co-ordinator who will be responsible for recruiting personal assistants to the directory, and undertaking checks on personal assistants before they are included in the directory. They will also be responsible for helping Disabled People to “purchase” Personal Assistants from the directory, advertise for assistance online, and recruit assistants. This is a new post and is initially a fixed term post until 31st March 2005, contract renewable subject to funding being secured. Grade: Scale 6 -£19185 Application forms, Job Descriptions and Personal Specifications are available from: Choices and Rights Disability Coalition The Arthur Richardson Resource Centre Savoy Road Hull HU8 0TX Tel 01482 788668, Fax 01482 719590 Tex 01482 719591 Email office@choicesandrights.demon.co.uk ‘Activate’ from BCODP (  n !* e Surrey Independent Living Council Surrey Independent Living Council (SILC) is an organisation of disabled people contracted by Surrey County Council to provide information and advice on Direct Payments to disabled people in the county. Please note that we deal with Direct Payments for Independent Living and this should not be confused with the term ‘Direct Payments’ as recently used by the Benefits Agency. SILC is currently expanding Direct Payments to a larger and more diverse group of disabled people. Direct Payments Adviser (Development) -Full Time Based at SILC’s Guildford office you will work one to one with Disabled People who are either preparing for or already using Direct Payments. This post also carries a brief to both develop support for users to recruit Personal Assistants and information on wider uses of Direct Payments. 35 hours per week (flexible), salary £20,946 to £24,525 Closing date 30 September, interviews Friday 17 October 2003 Young Persons Independent Living Adviser Based at SILC’s Guildford office you will work with individual and groups of Disabled People aged 13-25. Funded by Connexions Surrey the project aims to advise young people about options for taking control of their lives, including Direct Payments. The postholder will participate in the Connexions training programme. 28 hours per week (flexible), salary £19,059 to £20,946 pro rata Closing date 30 September, interviews Monday 13 or Friday 17 October 2003 The ability to travel throughout the area in both posts is essential. SILC is an equal opportunities employer. Applications from Disabled People are encouraged. For details please contact Nick Danagher on: Phone 01483 458111 Fax 01483 459976 Minicom 01483 459977 Email nick@surreyilc.org.uk ‘Activate’ from BCODP     s 4 &$ %$(! !*$" "' &$!' & # '   The Lothian Centre for Integrated Living (LCIL), a user-led organisation, has been awarded a grant from the Camelot Foundation Transforming Lives Fund, resulting in the ground- breaking It’s Your Life project. It’s Your Life is a unique new project offering support and advice to disabled people aged between 16 and 25. The journey towards adulthood and independence requires numerous decisions: where to live, whether to study or get a job, where relationships fit in, and so on. While such questions affect all young people, it can be particularly difficult for young disabled people to make informed choices, and It’s Your Life addresses this problem directly. The project provides a training course which includes an introduction to the Social Model of Disability. Hazel Farley, the Manager of LCIL believes this is a vital part of the project: “The Social Model offers a way of understanding disability in terms of the disabling barriers in society. Hopefully, young people who take part in this training will then feel stronger and more able to challenge discrimination.” It’s Your Life aims to increase awareness of Direct Payments and Independent Living options and to address the social isolation experienced by some disabled people by providing a peer support group. On an individual basis, professional peer counselling will be available. The It’s Your Life promoters, a group of It’s Your Life project participants, will design a professionally printed leaflet and visit schools and youth groups to publicise the project. They will also be invited to share their opinions on the different areas of the project, allowing LCIL to continue to improve its services. It’s Your Life is funded until May 2005, by which time LCIL will have produced a guide to good practice in association with Dr Charlotte Pearson of the Strathclyde Centre for Disability Research. These guidelines will be disseminated to interested organisations all over the UK. For more information about the project check out LCIL’s website www.lothiancil.org.uk ‘Activate’ from BCODP !& # !+'/ $&   #" ( i n Because the Department of Health refused to supply me with a wheelchair, which meets my needs, I have been forced into approaching a national charity. They informed me that a home visit was required. Living in a small rural market town I immediately recognised the name of their “registered” visitor. The letter stated that their visit would not be long or inquisitorial! Having introduced herself she said “Oh my goodness I didn’t know you were so crippled!” She asked me what is the meaning of calling myself Ms as she felt this is used by people who either haven’t quite decided on their marital status or have something to hide. She asked if I had been married, as marriage would gain me points. I explained I had been married for twenty years but was now alone. She then presumed he had died, and she confirmed that the twenty years of marriage would gain me points. I explained that in fact I was divorced. No brownie points here! She continued to question me about my family. I explained I had no children but only one sister and she asked me how often she visited me. I clarified that actually I had to visit her and this has cost implications, as her house is not accessible. She pointed out that having family would gain me points. Hooray! She could not understand that like many people I had no control over the number of siblings I have, neither had I the rights to reproduction. She then went on to question about my nieces and nephews and their marital status. Hardly the criteria for whether or not I needed a wheelchair. When I explained that one of my nephews was gay she did not want to award me additional points! She then informed me that she wanted to look around my home and fortunately I had already hidden the sex toys and the Gin and Tonic prior to her visit. She then proceeded to question my PA about personal details of my situation. I wonder if that scored me any points? ‘Activate’ from BCODP  t  This is your chance to have your say on anything about disabled people. It might be about a news item, something that makes you angry, a response to a previous letter or perhaps something about BCODP? Please send your letter to activate@bcodp.org.uk or see Page 2. ‘Activate’ from BCODP the village since Barclays closed our branch and the nearest one if a six mile round trip away. What happened to the Disability Discrimination Act? The year 2002 was Disability Awareness year. How many experts in the field of disability did you consult before designing these useless keypads and did you take their advice? The Post Office building has to be accessible to the disabled by law, but it seems that their services are not obliged to be accessible. For the first time in forty-four years I will not be able to draw my pension independently – not because of increased frailty but because of the arbitrary introduction of new machinery. Surely basic human rights should allow us to retain our independent control over our money transactions without the invasion of privacy and total disregard for the needs of a large proportion of pensioners. This is positive discrimination at its worst. Please reconsider allowing those of us with real problems to continue to be paid by order book. Yours faithfully A BCODP Member ‘Activate’ from BCODP what level that is wrong. All suggestions from us as to how to radically change the assessment have been totally ignored and the Department has steadfastly continued to use completely useless questions to which most people have to be economically with the truth if they are to get benefits that they absolutely deserve and are, in fact, legally entitled to. However much you train visiting assessors, the reality is that they find it difficult to act our their training and anyway, as figures show, a high percentage of assessments are done over the telephone. Where are you doing this pilot project and why have you chosen ? Why are you only consulting with us after it is done and not before it is all a fait accompli? It is typical of government nowadays that consultation is just a paper exercise and it is quite clear that no notice will be taken of anything that in any way disturbs what you have already decided. How can you be ‘objective’ about fraud and error, when you have a vested interest in finding it – that is apparent in your unit title and in your intentions behind this exercise. Do you really think that we can be fooled by such silly statements? Do you really think that a project such as this will identify incidence of under-claiming? How are you going to find people that you do not know? What, it seems to me, you are really going to do it to look at the people whose claims will be changed by your review. This says nothing about claiming. I am really saddened by the fact that we are all going to have to live through another horrendous time regarding benefits. Why is there this target on disability benefits when there are many other benefits, such as housing benefit, that are never really reviewed? The reality is that it is not disabled people who defraud DLA – if you are a disabled person you are entitled to it. The people who defraud are non- disabled people who see it as an easy way of getting money. You should realise that and realise that it is the eligibility criteria that you have to change to make it impossible to defraud – not a list of things that people can or cannot do which is easy to fake, nor a list of conditions that the medical profession cannot agree about. DLA is a contribution to the extra costs of disability. If applicants have to give proof of the need for those extra costs and what they are, then you are far more likely to find out the fakers. ‘Activate’ from BCODP As usual, disabled people are being denied our rights because we are seen as easy targets – for exclusion, cutting costs and pandering to discriminatory attitudes. Yours in sorrow and anger Rachel Hurst ‘Activate’ from BCODP I will contact you again following completion of the pilot, and prior to undertaking a main review, and would be happy to meet with you at that time to discuss the main exercise. In the meantime if you have any immediate concerns or would like to comment on the exercise please feel free to contact me. Yours sincerely Simon Major ‘Activate’ from BCODP Dear Editor I believe that Sandwell’s Employment Service is badly facing disabled people especially with regard to the two ticks Disability symbol. This symbol has been totally devalued and made worthless due to failing to censure companies who discriminate against disabled people. The charity Ideal For All Ltd, was found guilty by the Birmingham Employment Tribunal (14th August 2002) of unfair dismissal and discrimination under the DDA. If you read the Tribunals 28 page report you will find they place most of the blame for this case on the shoulders of the Executive Director Naeem Arif and the fact he completely ignored employment legislation and the Disability Discrimination Act. It was admitted at the hearing that none of the resources of the Employment Wing were put at the disposal of R Ellis nor were other agencies consulted about job retention, access to work, reasonable adjustments, redundancy. The Employment Wing of Ideal For All is funded at £60,000 per year from the regeneration Programme of Sandwell Council to help find disabled people employment. The Disability Rights Commission represented Mr R Ellis at the Employment Tribunal. The charity is still using the two ticks symbol i.e. ‘Positive about Disabled People’, which I believe is an utter disgrace. The symbol should have been taken away from Ideal For All when they were found guilty of discrimination against a disabled person. A complaint was lodged with Sandwell Employment Service in October 2002 (after the appeal time had lapsed) with regard to the use of the symbol. In April 2003 Employment Services finally had a meeting to review the use of the symbol with Ideal For All. Employment Services decided not to remove the symbol from Ideal For All provide that they consulted Employment Services about any future redundancies. How pathetic is this, providing you promise to be a good boy in the future there is no punishment for breaking the law? This sends out all the wrong symbols to employers in that you can discriminate against a disabled person and still use the two ticks symbol. What about the good employers who comply with all the rules when they see an organisation that is funded to assist disabled people into work being convicted of discrimination under the DDA and is still allowed to use the symbol. What is the point of bothering under these circumstances the ‘Activate’ from BCODP symbol is devalued and worthless. I have written to Maria Eagle for Disability and Nick Brown Minister for Employment requesting that they ensure that Employment Services enforce the regulations of the symbol. Both of these ministers have failed to even acknowledge my letters never mind respond which shows me how much this government values disabled people, lip service only. For the two ticks symbol to have any relevance to employers and disabled people it must be something worked for and its regulations complied with. I look forward to hearing your comments on this matter. Your sincerely BCODP Member ‘Activate’ from BCODP  s ' -! l Skill: National Bureau for Students with Disabilities Influencing the media's portrayal of disability from the inside From helpless victims to independent, active members of society -can disabled journalists change the media's portrayal of disabled people? The Leach Trust, supported by Skill: National Bureau for Students with Disabilities, believes that they can and this is why it is working to increase the current low numbers of disabled people working in journalism. In a 2002 Skillset survey of employees in the British broadcast, film, video and interactive media industry only 0.8% of respondents declared a disability. The Leach Trust awards three bursaries of up to £5,000 each per year to disabled graduates on postgraduate diploma courses in journalism and broadcast production. Skill will be administering the payment of the bursaries on behalf of the Leach Trust. Barbara Waters, Chief Executive of Skill, says "One way of counteracting negative media images of disabled people is by making sure that disabled people can access opportunities to work in the media themselves. Together with recent initiatives by employers in the media world to recruit disabled people, the bursaries should help to increase the number of disabled people working in the media. Potential students should also be aware funding is available for disability related study costs through the postgraduate Disabled Students'Allowances." Mark Weston of the Leach Trust adds "Some disabled undergraduates who have the aptitudes and commitment for a successful career in journalism are put off applying for training both by the generally hefty course fees and by the fear that they will find it difficult to find employment in the media because of their disability. By offering substantial bursaries the Trust aims to encourage the training and employment of more disabled journalists and programme producers. We believe that they can help to replace damaging myths and stereotypes of disability with a more realistic and authentic portrayal of disabled people, the issues that matter to them and the constructive contribution that they make to society". For information about applying for the Leach Trust bursaries, contact Mark Weston, Leach Trust Administrator, Lightleap, 38 Stonehill Road, East Sheen SW14 8RW Email: mweston@glyndon.demon.co.uk ‘Activate’ from BCODP # c  s !/ c  s ! !" & -&/&"5 . l     ' . w  Here is an updated report by Conrad Hodgkinson on the Accessible Property Register website www.accessible-property.org.uk which s now close to full launch... We hope to co-ordinate the launch with a pilot study that could hold much promise for the future. The pilot involves a leading Sheffield estate agent who will, for an experimental period provide information about access features for all property on their books. For this period the agent will: • Record access features for all properties meeting specified criteria. • Identify these properties on publicity material, media advertising and their own website with an 'Accessible Property'logo. • Use the attached information to inform customers of the minimum features that 'accessible properties'will include. • Adapt their own website to allow a search specifically for accessible property as well as via more normal criteria. It's taken nearly two months to agree these criteria, but we are now happy that they are as straightforward, unambiguous and manageable as we can make them at this point. We also feel that identifying property meeting these criteria will be of genuine benefit to customers. Once the pilot study goes live, it will be possible to assess customer reaction. It may be a small step for mankind, but Chris and I think this is a real breakthrough. If estate agents generally could be persuaded to adopt this system it would go a long way towards achieving our aim of bringing accessible property into the mainstream. ‘Activate’ from BCODP 4 ;$ "'&!$"!# l -$' u 2' & $ u SPONSORAT !$&$ #:& Thereareopportunitiesavailableforcharities,individualsandbusinessesto advertisewithinChipmunkapublishingpublications.IfChipmunkapublishing seesyoupromoteapositiveimageofmentalhealthwewillworkinpartner- shipyou..Theminimumrequirementforanorganisationtosponsoranau- thororaprintrunis£800.Forthissmallfeeyourorganisationwillbework- Chipmunkapublishing,"TheMentalHealthSurvivor's Anyinterestedpartieswillingtopay£800should write inthesubjectfieldandemailusat: "sponsorship" info@chipmunkapublishing.com. TAKEALOOKATTHEAUTHORTHATYOUWISHTO http://www.chipmunkapublishing.com ! a # t Publisher". &$& r $ # inginpartnershipwith: b l i &4&$ o ! p !!& n  a (' n n y '&(3 a It is with sadness that we report the death of Neil Robinson 42 yrs, Past member of Lothian Coalition of Disabled People and was for sometime the Scottish representative of DAN. Neil also worked for IDEAL training, disability awareness and equality trainers. Neil Died suddenly on Tuesday 30th April 2003. Neil work very hard within the disability movement particularly on issues surrounding access and issues affecting blind people. Neil was well known around the UK for his work, humour and belief in the Social Model of disability. Neil will be sadly missed by us all. His funeral attended by over 100 friends and family took place on Wednesday 7th May 2003 in Edinburgh. ‘Activate’ from BCODP Activate is available in a range of alternate formats on request. Please let us know what format you require by telephone 01332 295551, fax 01332 295580, Minicom 01332 295581 or email to: Activate@bcodp.org.uk © Copyright The British Council of Disabled People 2003 No items in this newsletter may be copied or reproduced without written permission from BCODP. BCODP, Litchurch Plaza, Litchurch Lane, Derby DE24 8AA Telephone 01332 295551, Fax 01332 295580, Minicom 01332 295581 Email general@bcodp.org.uk www.bcodp.org.uk