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Disability and Bioethics - Life and Death Questions

A Resource Pack for Trainers - Bill Albert and Helen Caplan - Funded by the Wellcome Trust

Welcome to BCODP's Training Pack on Disability and Bioethics.

The pack is available in both PDF and Word formats. In order to read the PDF files you will need an Adobe Reader (version 3 or above). If you don't already have it, you can download the latest reader for free from http://www.adobe.co.uk/products/acrobat/readstep2.html 
That page will also give you the system requirements needed for the latest reader, and directions to an Adobe Reader archive page for earlier versions of the reader. It also has directions to a download page for the text-only Adobe Reader if you are using a screen reader.

Feedback: We would welcome feedback on any aspect of this pack, particularly details of which organisations have used it, and in what context, and with what outcomes. We won't necessarily be able to reply to you I'm afraid, but this information could be very useful in the development of this project to stimulate discussion throughout the disability community across the country - and wider!

Please reply to general@bcodp.org.uk with 'Disability and Bioethics Training Pack' in the subject.
Thank you.

Table of Contents ( Word and PDF documents)

1. Introduction: intro.doc, intro.pdf

2. Bioethics: bioethic.doc, bioethix.pdf

3. Disability, Bioethics and Human Rights: disabhr.doc, disabhr.pdh

4. Eugenics: eugenix.doc, eugenix.pdf

5. A Note on Illness: Illness.doc, Iness.pdf

6. Genetics: genetix.doc, genetix.pdf

7. Pre-implantation Genetic Diagnosis: pgd.doc, pgd.pdf

8. Pre-natal Screening and Testing: pre-nat.doc, pre-nat.pdf

9. Late Abortion: abortio.doc, abortio.pdf

10. Infanticide: infant.doc, infant.pdf

11. Genetic-based Cures: Gene Therapy and Stem Cell Research: cures.doc, cures.pdf

12. DNR Notices, Advance Directives, Access to Medical Treatment: dnr.doc, dnr.pdf

13. Euthanasia: euthan.doc, euthan.pdf

14. Appendix 1 Bioethics: ap1bio.doc, ap1bio.pdf

15. Appendix 2 The New Genetics and Disabled People - BCODP Position Statement: ap2bco.doc, ap2bco.pdf

16. Appendix 3 Disabled People Speak on the New Genetics - DPI Europe Position Statement: ap3dpi.doc, ap3dpi.pdf

17. Appendix 4 Organisations Dealing with Bioethical Issues and Web-based sources: ap4org.doc, ap4org.pdf

18. Glossary: glosry.doc, glosry.pdf

Copyright © 2002-03 The United Kingdom's Disabled People's Council .

UKDPC is a registered charity. Charity No. 1068743.